Karls friend Dr.Bendell knew Sookis oncologist at UCLA and her oncologist at Stanford and her surgeon at Duke. All the neighborhood dogs began to howl and bark. I promise to be a more reliable friend and pen pal. Karl disagreed. The title essay focuses on Patchett's friendship with Sooki Raphael, Tom Hanks' personal assistant, who spent the early months of quarantine in Patchett's Nashville home while receiving. That had been one of her greatest fears about coming to stay with us in the first place, that she would be unable to take care of herself, that she would be a burden, that she would embarrass herself. The trick was coming up with the nerve to confess our plans to Karl. may 21, 2019: Thank you for your concern about my medical procedure. Karl was home from work when we got to the house, and he and I showed Sooki around. He thanks me for it. He was watching the weather. Whenever I came to an intersection I would look to the right, the left, then up and down.. Almost from the moment we finished that first practice, she identified it as part of her recovery, the thing she needed to stay alive. We tried to be jolly and failed and cried again. For them the mystery is solved by the act, and I understand that; its just not the way I work. She was a zombie in the original Dawn of the Dead. But when? Primarily and in her soul she was an artist.. You will love her. She told me that part of the reason shed been hesitant to stay with us was that she didnt want to trade on Toms friendship with me. Sooki Raphael is an artist. Learn more about SurvivorNet's rigorous medical review process. She was disappointed. Absolutely. PGVs (pathogenic germline variants) are changes in reproductive cells (sperm or egg) that become part of the DNA in the cells of the offspring. While I was in Virginia, a series of tornadoes hit Nashville. But once we had finished that first short practice, she turned to me, blooming. And I think that that's the best thing we can possibly do." At Harper 's Ann Patchett spins the tale of her unexpected and deep friendship with Sooki Raphael who worked as a personal assistant to Tom Hanks: "Come on, Sooki," [Hanks] said, his voice gone grand. I could already see her tumbling down the street. He would bring a copilot to split up the hours. She was going to be stuck in a chair all day, which was why it was necessary to do it again at night when she got home. She looked like a tiny rock star in her shaggy pale-pink coat and sunglasses and high boots. I was struck by an overwhelming sense of wanting to know her, of not wanting to miss Sooki while she was here. We were sitting at the bar at California Pizza Kitchen at four oclock in the afternoon. But this was right, and we would all be fine. Please Scream Inside Your Heart:New book relives chaotic 2020 news cycle in a good way, She states it quite plainly in the introduction, Essays Dont Die, a short piece that describes the process she used to select the essays for this book, most of which appeared in slightly different form in other publications. There she was in the doorway, outlined in neon tubing. This one is good for your liver. This will help all your internal organs. You are beautiful. But now shes memorialized in author Ann Patchetts latest book. With our hands on our shoulders we turned left and right, left and right, endlessly. The authoritative record of NPRs programming is the audio record. In a previous interview with SurvivorNet, Caleb Farley talked about his mothers battle with breast cancer and how heopted out of his position as a cornerbackfor the Virginia Tech Hokies due to COVID-19 concerns. I knew I would write about Sooki eventually, I had told her so, but I had no idea what Id say. In an essay describing why she decided not to have children (There Are No Children Here) Patchett writes that she had to make a choice between writing and children and lacked the energy for both. Did you have a hard time?. What Sooki gave me was a sense of order, a sense of God, the God of Sister Nena, the God of my childhood, a belief that I had gone into my study one night and picked up the right book from the hundred books that were there because I was meant to. It's by Ann Patchett. We lit the gas stove with matches and made dinner. You okay? Sooki asked. Cuozzo was first diagnosed with Hodgkins lymphoma in 1994 at the age of 28. At her first meeting with Hanks, Patchett also met his personal assistant, Sooki Raphael, whose unusual evening coat, its huge peonies . Off we went to bed, the book and I, and in doing so put the chain of events into motion. My goal was to maintain neutrality. In the titular essay, Patchett reflects on her serendipitous friendship with Sooki Raphael. I flew to New York early the next morning, took a car to New Jersey, signed several hundred books, attended a cocktail-party fund-raiser for the Book Industry Charitable Foundation, gave a talk in a crowded town hall, got to my hotel room in Manhattan at midnight, got up in the morning to tape a segment for the Today show, then was back on a plane. And if I did have a favorite, I definitely would not admit it publicly. There were so many other people who would have done anything to be with herher mother and husband, her daughter and son and grandchildren, her sisters and all of her friends. (I say this as someone who is spending my days trying to write about our friendship and what happened here. All three of us had lost our fathers, all three of us were close with our mothers. We found a diner down the street from where I would be speaking. She met Sooki Raphael,. On the porch, Sparky joined in. He describes her as "someone who is all that is good in the world." A neighbor of Patchett's described Sooki as a saint. It was normal in October, three months postchemo and radiationgreat newsbut then started rising. She looked like Los Angeles in winter. That I would like to meet her in the way I had wanted to meet my pen pals as a child? The rain went on for another half an hour, and when it gave up I put Sparky on his leash and the three of us went outside to wander and gape with our neighbors. Patchett said she loves her home in Nashville with her doctor husband and dog. Locked out of your account? Of course we are.. Like a Cessna? Once I start writing things down, I feel like Im nailing the story in place. The caps had to be switched out every twenty-five minutes during treatment to ensure that her head stayed more or less frozen. Out on the tarmac, I could see her again exactly as she was, resplendent in her velvet coat, her black beret. As we worked our way through trying to get contracts signed and making arrangements with the audio producer, our emails became an affectionate exchange. She had once shown me a picture of herself standing in the surf wearing a bikini, a sarong tied around her narrow hips. In case you havent read it, Uncommon Type is a very good book. She taught ceramics classes. The price of living with a writer was that eventually she would write about you. I wasnt suffering the crashing waves of anxiety that battered down so many people I knewthough two hours of daily yoga and meditation also contributed to keeping panic at bay. The paintings were bold, confident, at ease. Most days I went to work at Parnassus for several hours, filling boxes. I like myself here, she said softly. I tried to imagine chemo while living in a hotel. Most mornings, Sooki set out in the darkness to walk the two miles to a power-yoga class that started at six-thirty, despite the presence of my car keys on the kitchen counter and explicit instructions to drive. I just would worry too much about being a bad friend. The title piece in the autobiographical essay collection These Precious Days by Ann Patchett is about her unexpected friendship with Tom Hanks's personal assistant, Sooki Raphael, who ended up living with Patchett and her husband in Nashville while enrolled in a medical trial for pancreatic cancer. But a few months later, I got an email from Tom Hanks early in the morning. In making the journey to Oz, she had found the strength and clarity she needed to go home again. The truth was that I had no idea how Sooki was doing, and I had no confidence that she would tell me. Thought-provoking commentary and opinion on politics, books and the arts. She had transferred her life into brushwork, impossible colors overlapping, the composition precariously and perfectly balanced. Sooki hadnt answered the question, but that was the day I felt as though we started talking. And that was so sweet, but what it meant was I couldn't go home for Thanksgiving. I was taking in every precious day. She shook her head. Should I have woken them up and made them come down to the basement? Sookie paints and paints and paints. It was enough just to be together in all that darkness. There was no hesitation on the canvases, no timidity. Then one day she told me she was starting to shed. No events scheduled for January 16, 2023. Our newsletter vital information, hope, and healing, delivered weekly. Our correspondence was less about bookstores and more about books. They would flow on in papery layers, in a creation act. She painted. The caps were in the Mary Poppins suitcase, along with her paints and easel, the large blanket she had brought us as a gift, and her extensive wardrobe. She made wedding cakes that tasted as good as they looked. It has to do with fearing death. My doctor paired up some words I never thought I would hear together: pancreatic cancer and youre in remission! It seems like an early declaration, but Ill take it! I would love to stay with you for my first night or two in Nashvilleit would be wonderful to spend some time with you. All the messages were about Tom and Rita. Or maybe it was the company. For Patchett its Snoopy: Snoopy taught me that I would be hurt and I would get over it. She had set up her life in the basement of our house, a place we never went. By the time the book is written, there is little evidence of the initial spark or a long-ago conversation in California Pizza Kitchen. The treatments left her tired, but she was managing. On the morning of September 11, 2001, I was sitting in a caf in the West Village with my friends Lucy and Adrian when a woman ran in and said a plane had just hit the World Trade Center. Sooki had been working for the bat squad in New York when a bicentennial parade passed in front of the Bureau of Animal Affairs. It has to be one of the most extraordinary stories of lockdown how Tom Hankss assistant Sooki Raphael, undergoing treatment for recurrent pancreatic cancer, came to be living in the basement of the novelist Ann Patchett and her husband Dr Karl VanDevender. Oh, shes darling, Sister Nena said. We took turns cooking or cooked together. We put on the music, the eye masks, covered up. I had gotten up in the dark to make stacks of sandwiches. She liked herself again. I had spent my professional life looking at my calendar, counting down the days I had left at home. As soon as the roaring thunder of approval eased, he pointed at me and said, She doesnt have any questions.. No events scheduled for January 19, 2023. An epilogue describes how before Sookis death they manage a day on the beach and a celebratory exhibition of her paintings. She was an artist. She wasnt just her illness. A forest sprung up in the middle of the street. I had warned Sooki about all of this before she arrived. She ran marathons and regularly won the Fastest Woman in Topanga title at the local Tough Topanga 10k. Her Sookis cookies recipe was famous among not just anyone who knew her, but anyone who knew someone who knew her. When she gave us the painting she had done of Sparky on the back of the couch, I felt as if Matisse had painted our dog.. I worried, and thought it was not my place to ask. Karl spent a huge amount of time studying weather as part of his instrument-rating prep. When it. I paid the check. I no longer needed the protection. Then as the world was ensnared by a global pandemic, the two friends formed a pandemic pod. In a piece for Harpers Magazine called These Precious Days, Patchett told the story of their friendship and spoke of her admiration for the paintings Raphael created at her home. Everything filled in. Sooki, in her eye mask, was lying so serenely beneath the furry blanket she had brought us from California that I wondered if she was dead. He was to play Elviss manager, Colonel Tom Parker. Donations can be made in her name to Pancan.org or Seasave.org/oceanofsooki. So what are the deadlines, days needed, etc? Writers who do readings at the bookstore are often stashed in the guest room. It turned out that Tom and Rita came to town something less than regularly but more than I would have thought. Sooki had had a toucan in college. Shes there in Patchetts basement for the rest of lockdown. We miss you. I told her, of course, that she would stay with us. Now Sooki and I sorted through them like old baseball cards. Marriage also meant that I would listen if he tried to talk me out of it. She was looking to get into a clinical trial for recurrent pancreatic cancer and not finding one that had room or matched her cancer. And also, she was very low on white blood cells. Read More. I knew there was a part of her that believed that maybe what Nashville had to offer in terms of fighting cancer was happening in our house, that she was improving because she was with us. The ones Tom Hanks approved of were handed to me. How is it possible? I said as I complimented her again and again. This wasnt the first time Id invited someone we didnt know to live with us. Sooki Raphael leaves her canvas as colorful as she has led her life. RELATED: For Actor Val Kilmer & Millions Fighting Cancer, Theres New Evidence Art Helps Reduce Anxiety, Theres no clock on creativity, Wilson wrote on Instagram. Dionne Warwick came in with her son. Recurrent pancreatic cancer kept me focused on the present moment. We were still at the beginning then. Sooki Raphael . I wanted to call and tell her how it had all turned out. We are. Thats been everything to me, and my life. I find a stream and follow it, the stream dries up, and Im left to look for moss on the sides of trees. The park was packed this morning. , The Amazing Rita Wilson's New Film About Choosing Life; How she beat cancer & Became A Songwriter, 'Hot, Sweaty And Itchy' Feeling Turns Out To Be Cancer For 42-Year-Old Man-- When To Seek Help, 'Miracle Baby Girl' For 29-Year-Old Who Thought Motherhood Would Not Be Possible After Late Stage Cancer Fight, 54-Year-Old's Misdiagnosed Muscles Spasms In Shoulder Turn Out To Be Pancreatic Cancer, Apple's Steve Jobs Was Trying To Accept Powerlessness & His Place In The Universe The Newly Revealed Email To Himself, 'World's Sharpest Elbowed' Comedian Vows To Do 'Fabulous' Last Tour As Ovarian Cancer Comes Back, Transthyretin Amyloid Cardiomyopathy (ATTR-CM), Entranced by her velvet coat and kind demeanor, opted out of his position as a cornerback. The same trial she was part of in Nashville had finally commenced at UCLA, twenty minutes from her house. Forget that. The bookstore was closed to the public, but we were still shipping orders. Click, click, click. But have you seen my phone? And this is how Sooki became part of something bigger than herself, pure art destined to express the beauty and mystery of the world that she could see more than most of us can. Sadly, Raphael passed peacefully on April 25. Sooki washed her sheets and towels, cleaned the bathroom, vacuumed. We hope you enjoy reading another article this month! I understand the impulse but I also think weve transcended it. Im around if you want to talk. She said she didnt know what she was going to do. If youre concerned about pancreatic cancer in your family, start by talking to a genetic counselor to learn more about your risk and what options you have, Everett said. She helps the poor like Dorothy Day.. (These Precious Dayshas a portrait by her of Patchetts dog Sparky on the cover). This text may not be in its final form and may be updated or revised in the future. Then Covid strikes; 2020 is all but canceled and its impossible for Sooki to go home. And I want you to explain why that felt easier to write during a pandemic than fiction. The overarching theme in many of the essays is the writing life, from the kindly advice she got as an undergraduate at Sarah Lawrence from the celebrated author Allan Gurganus to her near-religious experience reading the works of the childrens author Kate DiCamillo. My blue torso, the mold made on the day I came in for my fitting and tattoos, is already on the radiation bed and I need to bare my abdomen and slide onto the table so they can line up the laser beams with all my tattoos and red-sharpie xs before they cover me with a warmed flannel sheet. A writers life is by definition one of solitude, but Patchett, perhaps more than others, appears determined to wrest incident out of the random details of her busy life as an A-list writer and advocate for independent bookstores. My friend Sister Nena had just called. Could any business wish for a better spokesperson? Forget about the heartfelt letters. I think this is just the way I am, she said. I saw Tom and Rita in Nashville two more times. It was late and Id just finished the novel Id been reading. . Shed called me from outside the airport. And anyway, its my fault. I might have made the choice to let it go unmentioned had there been something else to talk about, maybe his mother or my mother or the spigot that had frozen in the garage. How could I not have known? What Sooki is, Tom wrote to me in an email later, is all that is good in the world.. The people around him arranged themselves into different configurations so that the assistant could take their pictures, each one handing over his or her cell phone. She apologized for her late response, saying that shed had a medical procedure and hadnt been in the office. I was trying to read her lips. She learned to solo an airplane before she learned to drive. My husband, Karl, and I sat in a dressing room with them for an hour and a half between sets. The only other option was to go with stickers which could shift or come off in the shower. I wanted Karls comfort and was glad he wasnt there. I finally asked her to write down the phone numbers of her husband and son and daughter, telling her that if she got sick, if she were in the hospital unexpectedly, Id need to know how to get a hold of them. There is a possibility that a $25 painting acquired in 1899 was an original Raphael worth $26 million. He wanted to know whether I liked owning a bookstore. It wasnt that I could kill someone; it was that I could kill her. Its so important to twist this way, the gentle voice of the yoga teacher reminded us. She's allowed to live in the world, and not be one thing. Seventy percent of participants rated it among the most personally meaningful and spiritually significant experiences of their lives. He rolled his eyes, but he kept reading. Sooki had downloaded it. We love you, Sooki. I knew how to do that. The paintings were bold, confident, at ease. And you will always be in our hearts., And despite not having any formal artistic training, Raphael has done very well. I had breakfast with my editor and agent and publicist, and when we were finished they each decided not to go back to the office after all. I am now sitting at the airport waiting to catch a plane to my next opinion, at Sloan Kettering in NY. This storywhich begins and beginsstarts again here. I didnt say, This thing you live with every minute, this heaving horses skull, I held it for you today so that you could talk it out with the people who love you. You all did a book event. Ive written plenty of jacket quotes in my day, mostly for first-time writers of fiction whom I believed could benefit from the assistance. But my eye keeps going to her. I wouldnt have had this time with you and Karl. Ive heard writers say that they write in order to discover how the story ends, and if they knew the ending in advance there wouldnt be any point in writing. Where were you born? Sooki had two young grandchildren in San Diego and made plans to bring them to an event I was doing there, but they didnt show. In a heartfelt tribute after she died, Wilson told followers about the lovely artist that was her dear friend and shared some of her vibrant paintings. Raphael turned to art during a tumultuous time in her life and created works that will continue to be enjoyed long after her passing. That night there was still no power, and so we lit candles. Id been in touch with Sooki once or twice when there was talk of a bookstore in Santa Monica, and now I pinned my hopes on her as she dug into Toms schedule at Playtone, his production company. I could see Ken and how hes always been there for me, how he steps back to let me shine. This is what its like to write a novel: I come up with a shred of an idea. All rights reserved. I asked Sooki if she had any interest in trying psilocybin. It meant she didnt have to sit out chemo for a week. ), she developed a deep and lasting friendship with his assistant, Sooki. Maybe Niki was right about my life being different, but maybe thats because I tend to think of things in terms of story: I pick up a book and read it late into the night, and because I like the book, I wind up on a flight to D.C. Well, over the next few minutes, we're going to revisit the moment I did admit that there is one author whose books I am guaranteed to gobble up, who I will read every time - Ann Patchett. Sooki left messages for the doctors and put her phone at the end of her yoga mat, waiting for the call back while we practiced. A similar medical trial would begin months earlier in Nashville. Facedown on a bath mat, I forced myself to take a breath. document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Five-time GRAMMY Awardwinners and living legends, the Blind Boys of Alabama both defined and innovated traditional jubilee gospel, turning their live shows into roof-raising musical Multi award-winning Canadian singer-songwriter and pianist Laila Biali masterfully mixes jazz and pop, bringing virtuosity and unpredictability to songs that are concise and catchy (Washington Smothers Theatre, Pepperdine University 24255 Pacific Coast Highway, Malibu, CA. It had been more than two years since I met Sooki in a theater in Washington. That night as my husband and I walked our dog around the block in the cold dark, I told him about Sooki. Heres to more time to explore color and enjoy all the peoplelike youwho make life colorful. She had a son and a daughter-in-law with two children who lived south of her and a daughter and son-in-law who had recently moved north. In return, she sent me pictures shed taken of Los Angeles, a woman in an orange sari sailing past a city bus on a bicycle. We were about to go on. They knocked one another down like dominoes. Even in this first picture, a self portrait of her while undergoing chemo during Covid she still painted. Sooki had strength and courage. How could anything have been saved? I had to listen to what she was telling me. There was no other reason for me to be going on the cancer patients journey. She looked at me. Im still hereat Playtone and in general. It had been languishing in a pile by the dresser for a while, and Id left it there because of an unarticulated belief that actors should stick to acting. As in Patchetts first collection of essays,This Is the Story of a Happy Marriage, most of these pieces have been previously published in magazines (the New Yorker, Washington Post, Harpers) and are a blend of literature and memoir. PATCHETT: Well, thank you. How had she known something was wrong? A hundred thousand people in this country had already died of the coronavirus. It looks like Ill have chemo and maybe a clinical trial ahead. No empty spiritual space. I didnt say, Your death. I can tell you where it all started because I remember the moment exactly. I never cry, and yet I had plans to do nothing else for the rest of the day and maybe the rest of the week. Germline mutations in ATM, BRCA1, BRCA2, CKDN2A, PALB2, PRSS1, STK11 and TP53 are associated with increased risk of pancreatic cancer. And painting and painting. She loved her friends, and supported them with all she had to give. I caught an early flight home. aug. 5, 2019: Radiation has become a fascinating routine over the last five weeks. Everything was tremendously present tense for Sooki. . The money behind Ron DeSantiss populist faade, What the American Academy of Arts and Letters taught me about death. I didnt know what I would have done in her place, but I imagined that upon getting the news of recurrent pancreatic cancer I would go see my lawyer and settle up my tab with the house. Good, I thought. It was a minor footnote considering everything I got from Karl, but still, the warmth of it, the love: to walk in the door after a long two days and see that someone had imagined that I might be hungry knocked me sideways. Sooki exuded such an air of self-sufficiency that I scarcely thought to worry about her. I promised to call when it was over. I miss our emails. Were they awake and choosing not to come to the basement? 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